Four Years Later

It’s been four years. Four. This year January has been one of reflection. There is a curiosity within me as to where I’m at and how I’m doing at this point. In the past it’d be about “just figure out how to get through this” (and accepting that it might not be pretty for a handful of days leading up to and on her birthday). It was difficult to manage those feelings and the need to grieve with a second pregnancy followed by a rainbow baby in my arms.

Now, time has passed, Cora is a bit older, and I feel like I can take a deeper breath with all it. I can take the time to respond to what comes up and reflect, whether that’s tears or a moment of joy. I can appreciate this delicate and meaningful time with my family rather than it being so wrapped up in dread and suffering. This year, Cora is saying Whitney’s name for the first time and she understands that it’s Whitney’s birthday (she looooves birthdays and wants to know everyone’s birthdays and the order of them). I don’t think she fully understands all of it when it comes to learning about her sister, but she will with time. For now, I appreciate the innocence and love she exudes.

The Things Every Baby Loss Mom Experiences

In this journey of life after loss, if we allow it, we have the opportunity to connect with beautiful souls across the planet who are on a similar journey and we form relationships that become a powerful form of continued healing, for each person. A dear friend of mine recently (virtually) introduced me to a mama who lost her baby this year, and I’ve gone on to exchange some emails with this amazing soul. It’s eery to read her blog sometimes—it’s a different story, yet her words feel so familiar to my own. (You can find her blog here.)

I was writing Miriam an email this morning and took pause. I found myself spilling out words that needed to come out on “paper”—this process of writing, yet again, ended up being therapeutic for my own needs. I’ve lost touch with my writing lately, especially in the context of grief/loss/healing, and when I find the space to invite it back, it just feels good. 

(I should note: Although I haven’t been writing much this year, I am still doing the work. This year it’s taken more of a verbal form. Our family has embarked on full-time vanlife and one thing I’ve been doing is with John is what we call “DIY Therapy.” It started as a means to work through some rough patches we were facing as a couple, and in particular as a way to avoid any further arguing. The deeper we dig the more powerful it became. We committed to 2 x 30min a week, when Cora’s napping, and often we go beyond the 30min if we’re in a good state of flow. We have some boundaries established (aka rules) so it never becomes another fight or fuel to lash out on the other person. Shitty tone isn’t welcome. And the conversation never escalates into a heated battle. We’ve been incredibly mature at adhering to these rules, despite having no official mediator/therapist to guide us through, and it’s honestly been one of the smartest things we’ve ever done for the health of our relationship and for our individual growth and healing. It’s just this form of pure, authentic, non-confrontational, empathetic communication. A safe place to lay it all out while the other person listens and vice versa. And while it started out as something for “us” it’s also been helpful for me with my individual things.)

Anyway back to this mama who’s been on my mind. I’ve been reading her blogs, her process. The story of what happened to her and her sweet baby girl is totally different than ours, but the process—the process we go through as helpless grieving moms—it’s virtually the same! I used to “complain” to my grief therapist that I wished Whitney’s death had been something like a stillbirth because in my mind that would have somehow made it easier than the unusual circumstances that we actually faced. But my therapist told me that no matter how a baby dies, all moms (and likely dads too) have the same feelings of sadness, guilt, anger, confusion, and so much more. That guilt—it stems from not being able to save your child despite loving that child and wanting that child more than anything. It’s this heart-wrenching feeling that we failed our baby and it torments us to no end. Of course, all this is in addition to the obvious grief. And now I get it. My therapist was right. No matter how it happens, we go back and we rip ourselves apart. We find a way to blame ourselves for not having the instinct to step in before the catastrophe happened (even if there’s clearly someone else that’s to blame, we can’t help but feel responsible at some point, it was our kid after all). No matter how the death happens we mothers agonize endlessly that we should have been able to do something to save our baby. That somehow we failed. Even though it was entirely, utterly and completely out of our control, it’s hard for us to accept that. People say, “Sometimes these things just happen.” Yet, we think, “But why me? Why my baby? Why couldn’t I save him/her? I did everything right. Everything was perfect. How can I ever live with ‘these things happen’ especially when I had zero warning signs?! I should have been able to prevent this!”

If Whitney had been a stillbirth, I am now certain that I would have beaten myself up equally just as much or more so.

And it’s not just this one mama who’s made me realize this. I have many baby loss moms in my circle now, and I follow baby loss accounts on social media—it’s nearly the same for all of us (despite no two stories/circumstances being quite the same).

So anyway, I thought I’d share that email I wrote to Miriam. It’s a brief glimpse at where I am at close to three years later. On that note, quite frankly, when I think about writing a blog post these days, I end up getting overwhelmed with ideas and thoughts and so much that I want to share. I overthink it all and it ends up feeling like I’m about to write a novel. I become paralyzed with an inability to figure out where to start… so I walk away.. thankfully the organic nature of this email was a good catalyst to get a new post up. (Note to self: STOP OVERTHINKING IT!)

~~~

I think about you often. Truthfully, it’s so easy to get wrapped up in day-to-day life stuff, but Whitney taught me an important lesson—to remember to slow down and just be. And when I do that, what a gift it is. I feel like my most authentic self comes forth… and it’s also a time that I connect in a more spiritual sense with so much—those who’ve passed, other mamas who are walking this same path, like you, etc.

How is your body healing? Physically speaking?

I’ve read some of your blogs. I cannot emphasize enough the similarities of thoughts, feelings and emotions—and just the overall process of it all (for lack of a better term). Things like having a thousand questions, agonizing over the how/why (and why as her mom did I not have the power to save her!), why did our bodies “fail” us/her?!, I couldn’t keep her alive, the torture of being the <1%, the things you’ll never really know (despite having somewhat of an idea of what happened), going over everything again and again and again in this cycle that feels endless at times, reliving it and trying to understand WHY. The harsh acceptance of being a <1% and now having to live with that forever. Talking to a therapist and accepting that it’s ok to feel sad and not be ok…. but also the never-ending torture of feeling like you, as a mom, didn’t do enough, and then again you find yourself going back and thinking about all the things you could have/should have done differently. 

I’m almost three years in, and I am still working through these things. It’s not as intense and constant as it was in the beginningtime/therapy/and doing the work (like you are now!) does help—but it all is certainly still part of my ongoing healing/grief journey. Even though I’ve addressed all these things a million times, it’s like I have to go back to do more work at times—I think part of it is that, at my core, I’m a perfectionist and I want to research + fix things, to have control, but those things don’t work here, with baby loss!

Often in the van on long drives, John and I will have what we call our “DIY therapy” sessions and almost inevitably it turns into me crying about something Whitney-related. I’ll grapple with the acceptance and peace I’ve gained with still those feelings of guilt, shame, fear, anger, frustration, and just the mental torture those memories bring up. Though I’ve made progress, there’s still a lack of self-forgiveness within me and I’ll beat myself up—it’s a cycle I’m working hard to end. It’s weird, I feel like I can live with the grief, but some of those other feelings are the ones that rip away at me. It’s a process. One thing that has helped me more and more in recent times is treating myself (and talking to myself) as I would another baby loss mama, and learning to be kinder in my self-talk. If my story were someone else’s story, I would never look at that mom and think that it was her fault or that she fucked it up, rather, I’d look at that mom and think what a warrior she was and that all she wanted was the best for her baby. Nothing is more obvious than the pure love she had(has) for her child; a child that she’d never put in harm’s way. And that’s how I see you, and your story! YOU ARE A GOOD MOM, THE BEST MOM!

There’s nothing more clear to me than this: us baby loss mamas, all we wanted was the best for our babies, and nothing could be more genuine than that pure love a mother has for her child.

All the hugs. 

xoxoxoxo

Love Letters To Friends

There are a lot of “unforeseens” with loss. In the beginning you have tunnel vision. All you can see is that your loved one is gone. He or she is never coming back. And somehow you have to figure out how to keep going without them. Nothing feels more impossible than that task. Life after loss. That’s a hashtag I use quite frequently on social media because those three words life-after-loss hold so much meaning. They perfectly describe this journey I’m on and all the twists, curves and unknowns those of us face who’ve lost someone we love so dearly.

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Holidays

It’s the time again. Holiday season. In 2015 I vividly remember thinking, “This might be the last Christmas with it just being John and I.” In 2016 we were in the midst of trying to conceive and I was aggravated not to be pregnant. In 2017 I was a month away from giving birth to Whitney, on cloud nine, and just wanted to skip the holidays so we could fast forward to welcoming her. Then in the most unexpected circumstances imaginable, in 2018 there was no Whitney, she had been dead for almost a year, and I was in my second trimester with our second daughter, Cora, and doing vanlife (also wanting to skip the holidays but for a different reason). And now in 2019, after a successful pregnancy & birth, we’re settled in a new (to us) home with our nearly 8-month-old rainbow baby, finally feeling some stability and joy this Christmas.

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Six Months Into Parenting Our Rainbow Baby

What is it like to parent after loss?

It’s not a straight-forward answer. At times I feel incredibly normal. At times I’m happier than I ever imagined I could be again, and I want to shout it from mountain tops. At times I feel like a real-life superhero. At times the wounds from Whitney feel as fresh as ever and it’s a paralyzing pain. At times I’m easily trigged (usually when least expected) and my mind goes to a dark place. At times I just need to cry. It’s all of it.

Most of all, though, having Cora with us has been so grounding and joyous. The moment she was born, something in me REIGNITED and I was called into duty. A beautiful and tender new chapter began—with grief and sorrow invited to coexist. Motherhood keeps me driven to not only better myself and but be the best mama I can to her. I have a lot going on as a new mom/stay-at-home mom/working mom (who runs two businesses from home), and it can be overwhelming, but I also feel very driven and passionate about my role in this universe, as tiny as it may be, and that keeps me going.

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Getting To Know a New Face

This is very hard for me to admit out loud, but I think it’s important to share how it truly was for me. I didn’t realize this through my pregnancy—I guess it was subconscious and not floating around in my thoughts—but I wanted Cora to look like Whitney. Somewhere in me, deep down tucked away, I was thinking I was going to see Whitney again when I gave birth the second time.

So when Cora didn’t look exactly like Whitney, I admittedly felt a little sad about it. And then quickly I felt like the world’s biggest asshole for feeling even a tiny bit sad that my perfectly sweet rainbow baby didn’t look like her deceased sister. Actually, Cora does look like Whitney in many ways (especially when she’s sleeping), but Cora is also her own person. She is unique and special in her own way—and that is how she will be raised. She is Cora, not Whitney. And now three months into having Cora and seeing her develop into a unique little being, it’s easy for me to love her exactly as she is and not compare her to anyone or wish she were something else.

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Giving Birth To A Miracle

On April 30th, I woke up just before 2am with that feeling. I was in labor. I had a false alarm about a week and a half prior, but this time I intuitively knew this was it. And, unfortunately, once again I was feeling it all in my lower back. Yes, back labor. Again. Just like with Whitney. But I didn’t panic. I was prepared for this to happen, I’d been through it before, and had talked about “if it were to happen” with my current doctor, Janine. It’d be painful, but it’d be ok.

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Counting Down The Days

Last night for some reason I was up till midnight reading all my posts on this blog from start to finish. I’ve never been one to go back and re-read my writing like that, so this was different and a bit out of the blue. It’s hard to describe how it felt to read my words. It’s such a tragically sad story, and at times I was like, “Did this really happen?” It’s surreal. I’m so glad I wrote as much as I did, and I can see the evolution John and I have made in a year’s time. Mostly I’m just proud of us. Proud of our healing, proud of keeping Whitney’s memory alive, and proud of the parents we’ll be to our second daughter.

We are nearing the end of my second pregnancy, and it sometimes still feels too good to be true that we’ll be having our second daughter join us in less than 3 weeks. I can’t believe the journey it’s been to get here—the journey to bringing a baby home. It’s been 2 years and 7 months in the making, including in that time two full-term pregnancies and the most heart-wrenching loss imaginable.

Currently, I’m doing whatever nesting is possible when not living in a longterm home, tying up loose ends, and checking things off my to-do list. Birth bag ready. Car seat installed. Baby clothes washed and folded. Arrangements for the dogs made when for we’re away. Maybe reading this blog in its entirety was an act of acknowledging the Whitney chapter of our life, and symbolically allowing myself to further open my heart to what’s coming without being overly stuck in the past…? I don’t know.

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A Lawsuit That Will Never Be

There is a part to our story with Whitney that I’ve never followed up on—our decision on whether or not to sue the OB and hospital. For so long this piece was a huge source of turmoil for me, but I found my answer and I have my peace with it. It’s taken me forever to open up about it because I just hate it. All of it. It makes me sick. But I feel drawn to write about it finally, so I can close this chapter, get it off my mind, and be done with it before the arrival of our next daughter, which will be taking place in six weeks or less.

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Anxiety

I’ve seen my trauma and grief manifest in a thousand ways this past year, including new unique issues that have popped up during pregnancy after loss.

The deeper I’ve gotten into this new pregnancy, the harder of a time I’m having with certain things that were once no big deal. I first starting noticing these things during vanlife travels in the fall (side note: there’s a huge post I need to write just on those three months of travel and how wonderful and valuable, yet, how difficult, that time was for us). Episodes of anxiety, paranoia, hypervigilance, whatever you want to call it… it sucks.

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A Poem

I was recently introduced to the poet, Mary Oliver, and her work. Unfortunately, I didn’t discover her until the week of her death on Jan. 17. Her poem, “Wild Geese,” practically fell into my lap one day—I saw several references to it in a matter of hours—and since then I’ve been reading more of her work. This poem of hers felt like everything to me:

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11 Things Loss Has Taught Me

I’ve been reflecting on this past year, a year I never imagined would be a chapter in our lives. There are moments when the weight of our loss still leaves me feeling suffocated, but then there are times when the light shines through and my mind sees peace and calm. I can honestly say I’m doing pretty well overall… and I have to believe that’s because there have been so many lessons, so much growth, and invaluable gifts we’ve received from our Whitney June.

I was thinking recently, there are probably parents who just now facing the loss of their sweet baby and are feeling the initial shock and horror that we felt a year ago, wondering if they’ll ever be able to survive, how they’ll ever live without their little person, and if their days of happiness are gone forever. I remember being in that position and seeking out anything and everything that could help me understand and comprehend, feverishly reading everything I could find on baby loss. I also had to pave my own path, doing what I felt was best for me in this situation.

Now, a little more than a year into our journey, I’ve marked the most important lessons that loss has taught me; things that may be helpful for anyone who’s grieving the loss of a loved one, baby or otherwise.

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One Year Later

Happy 1st birthday, my angel.

On January 25, 2018 we met you and had to say goodbye to you all in one day. For the past year you’ve been on my mind constantly, not to mention every moment of the 40 weeks leading up to your birth. I knew your birthday would come eventually, but it wasn’t until Wednesday the 23rd that it hit me like a ton of bricks—you were about to turn 1. It’s been a year.

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First Trimester Blues

We returned from our first baby appointment in September, and John got right back to work on the van build. It was taking him longer to finish than we expected, but in a way I think it was a blessing in disguise. I felt like shit during my early first trimester—way worse than my pregnancy with Whitney. Eating was a job and I was so tired every day, often napping for two hours, thankfully I was not throwing up, just nauseous and tired all day every day. I needed to the stability and ease of home during this. Meanwhile, we were still integrating June into our family and potty training her; she was still so tiny and new.

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January & Letting Go

How is it that we’re already approaching Whitney June’s first birthday? Never has time moved so fast yet so slow. I’ll never forget last New Year’s Day, 2018. Waking up January 1 brought me more excitement than ever before because it meant one thing: baby due date month had finally arrived. I had a gratitude journal that was gifted to me and it was built out like a calendar where you’d fill in one thing each day, and pretty much all of my January 2018 entries leading up to the 25th were baby-related gratitude entries. As the days got closer, the excitement grew.

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Meeting Baby

We flew out to Nashville in September for our first appointment since we weren’t ready to leave in the van yet. From there, we explored the area and places we might live then drove to Kentucky to our new OB’s house where we’d stay for a night, before the appointment. In fact, she even drove us to the appointment! Talk about personalized care. By the way, I’m going to call her by her name, Janine, at this point.

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A Rainbow Emerges

I felt the need to take a break from writing publicly in order to privately focus on a new chapter that’s begun for us: pregnancy after loss.

Yes, I am pregnant again and we found out in August (due May 3, 2019). It happened relatively fast. We were advised to wait 6 months after Whitney’s birth to get pregnant again, and that’s basically what happened—my last menstrual period for this pregnancy (i.e. pregnancy Day 1) began two days after her 6-month birthday. Considering it took 8 months of trying and trying to get pregnant with Whitney, I was shocked to get a positive test as early as August. I was mentally gearing up for another long road of TTC ahead… But alas, the universe had other plans for us this time and words can’t even fully express my gratitude for that gift.

~~~

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June

Our lives all brightened a little more on July 27 when our new rescue puppy, June, came home to us. She’s been with us for over four weeks now and I can say with confidence, if you’ve experienced baby loss, consider adopting a dog (even if you already have one). My friend who also lost her baby boy in January adopted a pup shortly after their loss, and she said he “saved my life.” After getting June, I now understand what she means. There’s a lot of power in the love of a dog.

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Coexisting

It’d probably be better to start a vanlife blog if I were to go into all the stories from the road, there are just so many. But there are a few that stand out in my mind that more specifically relate to Whitney, and my new world of coexisting with grief and joy…

After John and Finley picked me up from Colorado, we were slowly headed to Chattanooga, Tennessee, for a wedding that was in a week or so. I realized that our route would take us near the home of one of my athletes/friend—a woman who’s been such a rock for me in the aftermath of Whitney’s death. She’s an OB (I think I’ve mentioned her before), and her husband’s a neonatal doctor, so I think our story really hit them extra hard. She was there for me whenever I needed to talk, to grieve out loud or to ask questions about more medical-related circumstances. Even being nearly 2,000 miles away with a busy life of her own, she was there as a shoulder to cry on. And she’s still there for me. We did some math, and found out that stopping by their house in Kentucky would actually be really doable. I contacted her and the dates worked, so we planned to stay a night with their family.

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Embarking On Vanlife

When John picked me up I was very emotional. He was very emotional. Lots of teary eyes between the two of us.

I was coming off this incredible meditation retreat that had deeply impacted me and helped so much with my healing—I really wasn’t expecting it to be that life-changing. I would have stayed longer (it went on for a month) if it hadn’t of been for my boys.

As for John, he had missed me so much, and now he had me back—and we were doing our next round of vanlife. Every minute he was saying “I missed you; I love you so much.” It was so raw and heartfelt. He told me he and Finley drove by the retreat the night prior to picking me up, in order to scope it out so he’d know the lay of the land when coming to get me, and when they drove by he said Finley went crazy—as if sensing that I was there and wanting to find me. They camped just a few miles away that night and he was right on time to pick me up.

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A Week of Meditation

It’s been a long time since I wrote. Seven weeks to be exact. A couple days after I published the previous blog post I boarded a plane, all alone, to Denver. It was terrifying—I never travel without John and in this vulnerable state everything felt uncomfortable. I came really close to cancelling the trip all together. But I was determined to work through all the distress I was feeling in hopes that my final destination would give me the kind of healing and peace that I so badly needed. (Spoiler alert: It did.)

I was headed to a weeklong meditation retreat in the Colorado Rockies; specifically I was about to spend nine days off the grid at the Shambhala Mountain Center in Red Feather Lakes, CO, at something called a Weekthun.

Now I’ve meditated a little bit, but really I’ve only scratched the surface. Total novice. But I felt a strong calling to visit this place and completely immerse myself in the practice. I essentially threw myself into the big leagues—nearly everyone there was much more experienced—but I quickly got in the groove and every day for a week I clocked hours and hours of time on the cushion. Essentially it was meditation boot camp—a loving, kind and positive boot camp. A boot camp where it was ok to break down crying and expose our tender hearts.

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Social Anxiety

Saturday night in Sedona rolls around (read last post to catch up if you haven’t), and it was somewhat of a big night for me—Sam, the bride, had asked me to speak at their rehearsal dinner a month or so prior, and the big night had finally arrived.

Back when she asked me to do it, she had said, “Don’t worry if it’s too much for you right now, I totally understand, but you were my triathlon coach and now you’re such a special friend—you know a side of me that not too many people at the wedding really know about, even our family, and I’d love for you to share some stories.”

I was honored but told Sam I’d have to think about it—could I do it? Am I brave enough yet? Ultimately I said yes. I thought it’d be a good step back into the “real world.”

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Lonesome Living

I have so much going on in my brain right now and about a million stories I want to write about from the last couple weeks.

After Italy, I had a stretch of really good days for nearly three weeks (all things considered). I felt like I was becoming more positive-minded again, better at quieting the mind of everything that makes me distressed and batty, and more accepting of this new life—even feeling how it can make me a stronger, better person. I was proud that I was doing so well. John was so happy for me.

But then just like that, it all seemed to go to shit. I started a steady decline back into the darkness, the sadness and the “why me-ness.” There was no one specific trigger, I just started feeling shitty about everything again, good days/good moments becoming fewer and farther between. It was as if my heart would stop beating and I couldn’t breathe every time I realized: Whitney is truly dead; she’s gone.

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Mother’s Day 2018

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I saw this image floating around on Mother’s Day and then my sister-in-law texted it to me, along with “you are the strongest mom I know.” Man, does this image speak volumes for so many of us. If we’re not in one of these categories ourself, we certainly know a few women who are. Even as I go through my own grieving journey, I am thinking of so many of you who fit into one (or more) of these categories.

~~~

My first Mother’s Day without my baby has come and gone.

I just wanted to skip it this year—who would blame me—but that wasn’t happening. There was subtle dread brewing all week in anticipation of Sunday. I had no idea what to expect or how I’d react. If it was like my birthday was, it was going to be rough.

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How Do I Talk About My Pregnancy?

You know what really sucks? I feel like I can’t talk about my pregnancy or Whitney with anyone except a few close people. Even with John sometimes I have to ask myself first, “Do I really want to go there and bring the mood down?” It just seems too sad to bring it up or even potentially awkward for others. Or it’s a situation where I’m with people who don’t know me and don’t know what happened and I just don’t feel comfortable going there.

When we did Ragnar recently there were several times when I almost said, “Oh when I was pregnant I…..” but I’d stop myself before the words came out. Would I make people uncomfortable if I brought up my pregnancy? How would everyone else feel if I talked about it? How would I feel? Would I lose that ounce of strength that was holding me together? I didn’t want to find out so I never went there.

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Finding Joy With A Pain That Never Leaves

We’re back from our trip. The best way I can describe it: Perfect timing. Restorative for the soul and for our relationship, but not necessarily restorative from a physical standpoint—we were on the go and experienced so much in a relatively short time.

We travelled through much of Italy with a quick stop on the French Riviera, staying in seven different places over 12 nights, exploring and walking many miles most days. We drove to each destination in a rental car, which kept us on our toes.

Although the whirlwind nature of this trip kept us busy, we still found a way to relax and decompress. We realized relaxing wasn’t coming easily to us, yet that’s what we needed the most. That, and getting back on the same page.

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